A world of her own

This is Troy. I thought I should post a quick update because Rosie is not quite feeling up to blogging today.

We spent a good part of Saturday visiting Rosie’s brother and his family in Greenfield. We had lunch at the Steak & Shake and then hung out at their house for a while. She really wanted to see him while she still felt up to it. She worries about him a lot, so it was good to hang out a little. Rosie started feeling icky about 3:30 pm on Saturday, so we decided we should come home. Also, her brother is still recovering from pretty serious stuff, too, and he needed a nap. So we left and spent a quiet evening at home. Rosie and I took some time to handle some much-needed chores before she started sleeping all the time (she helped me with my resume, and we mailed about $3000 in medical bills… which is a lot of money, but they are pretty much all paid at this point… knock on wood!) She stayed up a lot later than we had hoped, but it was so important to her to get these things done before she started feeling bad and sleeping.

I’m sure Colleen was bored because she cleaned the toilet. NO, that is NOT a typo. Colleen decided on her own to clean the toilet. We were in our office and heard the toilet seat slam down a little harder than normal, so I went to investigate. I opened the bathroom door to find Colleen standing in the middle of the room with deer-in-the-headlight look and holding a giant canister of disinfectant wipes. I asked her what she was doing, and she said “I cleaned the toilet.” After a shocked moment or two, all I could say was, “Why?” She looked me in the eye and matter-of-factly said, “Because the box said I could.” She is quite the little reader lately and just loves that she can read the labels and find out what things do. So she apparently read the label of the disinfectant wipes, and it does say you can use them to clean a toilet. The moral of the story is to teach your kids to read! (Oh, and before you all call Child Protective Services… I cleaned her up really well afterward and asked her to not clean the toilet without adult supervision in the future.)

Rosie didn’t do much on Sunday. She was feeling pretty yucky and started taking her full dosage of pain killers (and all the other stuff), which really knocks her out. Colleen, however, had one of her biggest days of the summer. We had made arrangements ahead of time and a neighbor picked Colleen up and took her to church (she LOVES the church toys and crafts and all her church friends and wearing dresses, so she hates to miss even one Sunday). After church, Colleen had to wait an exruciating 2 hours until Shelby Johnson’s birthday pool party. I went as her chaperone, and let me tell you… it was a hoot! Nothing like a housefull of screeching five-year old girls. At one point, Colleen actually said, “Let’s all scream at once and see if we can bring the walls down!” and then counted to three. It didn’t bring the walls down, but it brought several parents to their feet! She’s quite the ring-leader. She is also getting to be a very confident swimmer, but she doesn’t know any strokes yet. I think she’s ready. After the pool party, Colleen was pretty exhausted (so was I) and we came home. Colleen promptly fell asleep cuddled up with Rosie on the couch, which was sweet. I ordered pizza and Colleen watched some of her favorite recorded shows. All in all, a good day for a kid. Rosie hates to miss all this stuff, but what she is doing is more important than a pool party!

Today Rosie is sleeping on the couch. Her mom is here helping and talking while I work from home in our office. I’m really glad she’s here. I think it’s really good for Rosie to have someone to talk to during the times when she’s awake, and it’s good for her to spend time with her mom (and her mom loves to straighten and fold laundry! woo-hoo!)

So, that’s Rosie’s life at the moment. Medicine, sleeping a lot. Eating a little, TV a little, and talking with her mom a little. I know she’s feels bad about all this time she’s spending in her own world and sleeping. I know she regrets missing so much and thinks the world is moving on withour her. But, the truth is she’s not missing too much… and it’s a small price to pay to stick around with us. Funny how the threat of death puts everything in a totally different perspective.

– Troy

Author: rosie

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3 Comments

  1. Hi – You don’t know me (hope that’s not creepy :-), but I wanted to post a big “thanks” for creating this blog. I’m 32 years old and was diagnosed with breast cancer 2 weeks ago. I found your blog by Googling for information. My situation seems to be somewhat similiar to yours, & it’s helped me a lot to read through some of your blog to see what to expect. Dr. Schmidt is also my surgeon, but I’ll be starting chemo soon in Terre Haute. I’ll keep you in my prayers for a complete recovery!

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  2. Sarah, I’ll have to speak for Rosie since she’s out of commission for a few days with chemo, but you finding this blog and feeling even a little bit better is EXACTLY why Rosie is publishing all this stuff.

    I’m not sure if you caught it or not, but we’re from Terre Haute and spend a lot of time there. If you want to maybe get together and chat in person, send me an email at troy@indy.rr.com and we’ll see if we can hook up. I think Rosie (and hopefully you too) would really like to find someone her age and same hometown in her same situation.

    Troy

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  3. Sarah, I am Rosie’s sister. I live in Terre Haute. If you need anything do not hesitate to ask. I have a rather flexible schedule and can help you with appointments, child care anything you may need. sunnybrook1972@msn.com
    Rebecca

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